A Few Rash Photos




 
 
 
 






 

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Happy Halloween!

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The realization of my diagnosis is starting to settle in and I’m finding myself feeling deflated and anxious. This disease has affected more than just my health. My mom has taken over a large amount of my mommy duties. My girls go to my mom before they come to me if they need something. Any relationships that were “in the making” before my illness plummeted are obviously “no longer”. My friendships seem to be on hold these days. I’m no longer on the call list when a friend wants to go out and be social. Everyone assumes I’m sick in bed… And to be honest, they’re usually right.  This disease is isolating and helpless. There’s no pattern to the symptoms, no warning signs before you turn into a puny, miserable person incapable of doing anything but lie there and breathe… It’s the disease’s world and you’re living in it. You have no idea what the next hour will bring. You live in the now and take full advantage of the good days because you never know how long it’ll be until you get an
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It’s been a month since I last posted on my blog. Things have been very busy around here!  After continuous Herxheimer reactions and helpless days, I decided a change was definitely in order.  A friend recommended I go to Washington, D.C. to meet with Dr. Jemsek. Dr. Jemsek is an infectious disease specialist in Lyme Borreliosis and tick-borne infection.  I was fortunate enough to talk with Dr. Jemsek at my initial consultation along with one of his nurse practitioners. The doctor and nurse practitioner both agreed I was a candidate for IV treatment. The 6 page list of daily medications I was taking was quickly eliminated. The doctor’s suggestion was to end all medications except Doxycycline. He prescribed Diamox, Klor-Con and Vitamin C to be taken twice a day for headaches. He started me on Neurontin twice a day for nerve pain and Trazodone and Klonopin for sleep aid.  Dr. Jemsek’s treatment protocol is essentially chemotherapy. Considering the current state of my body
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Guess Who's Back - Back Again. Shady's Back, Tell A Friend!

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After a 5 months hiatus from blogging… this girl is back! Welcome October! We meet again… although, in a much improved condition than the previous year. October 14, 2016, I began treatment through a local LLMD (Lyme Literate Medical Doctor). Initial lab results revealed I had 4 vector-infections: Babesia, Bartonellosis, Rocky Mountain Spotted Fever and Classic Lyme. Additionally, I had several viruses: MTHFR mutations, Parvo B19, Influenza A, Coxsackie A and B, HHV 6, Mycoplasma Pneumonia and Epstein-Barr.  I had my first port placed on November 14, 2016 at Menorah Hospital. November 29, 2016, several medications were added to my treatment plan - sleep aids, biofilm “breaker downers”, antimalarials, human plasma, anticoagulants, anticonvulsants, Glutathione, and an oxygen canister.  December, 2016, I experienced my first port infection. The port was removed and a PICC line was placed. Mid December, 2016, I developed multiple clots in my arm where the PICC
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