Purple Pride!

 


 



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Chaos

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It’s been 2 weeks since my last post. Life has been non-stop, I tell ya! My car suddenly died after a fulfilling 9 years of life. After a painful 8 hours spent at the car dealership, I got myself a purrty new car!  The following day, I had my port placement procedure. Holy discomfort! My neck vein was in so much pain afterwards. It still isn’t fully recovered. The home nurse came to my house the next day to go over the “how to’s” on everything. Next thing you know, I’m giving myself my own infusions. I’m PRACTICALLY a doctor now! Ain’t no thang!  The first week with my port in, I had 4 really good days. I took my girls to school, I ran errands, I went for walks, I helped make dinner and I took a couple Fusion Barre classes. I felt normal. I felt good! Things took a turn for the worse last Monday. Sunday, I met with a Fusion client whose boyfriend is battling Lyme Disease. When I got home from meeting with them, I felt like I had been hit by a bus. I anticipated the ...
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Jabber

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I’ve had several people reach out to me after reading my blog to send their condolences and I so very much appreciate it. Although, I want to make it very clear that I am, in no way, writing to get attention for my illness. During this strenuous journey, I’ve found that writing is really therapeutic. My initial reason for starting a blog was to document my disease from beginning to end for my own personal records. I later decided to share my blog to the public to keep everyone informed as well as to become a kindred spirit to others.  Writing is not only therapeutic, it’s also a skill that I can STILL perform that Lyme has YET to hijack from me! My brain/mind are slacking. I feel very uneducated much too often. I struggle choosing my words when I’m talking to someone. People probably think I’m a little nuts. Or legitimately stupid. I’m a note taker now. Notes on notes on notes ya’ll! If I’m not taking notes, chances are, I’m not going to remember a darn thing. Brain fog, y...
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Smile & Be Happy!

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My doctor called Tuesday with some exciting news… My lab results were in! My parents and I met with her that afternoon… 11 pages of results - 4 1/2 hour appointment! Lordy lordy! I was finally receiving confirmation of my diagnosis! Just as my doctor suspected, but now with verified proof, I am positive for Classic Lyme, Babesia, Bartonella and Rocky Mountain Spotted Fever.  My blood sugar levels are low, my eosinophils are elevated, my carbon dioxide levels are low, my immunoglobulin subclasses are deficient and I have vasculitis. Have I lost you yet? Enough medical talk! I won’t bore you with the details.   So now it’s “go time” with a plan! I am getting a port implanted Monday. The port will host my daily IV infusions. Along with the antibiotics, I’ll also be receiving anti-malarial infusions. Babesia is a cousin of malaria - pretty fascinating, huh? Just wait, it gets better! I’ll be injecting myself up to 6 times a day just like your average junkie! Holla at your gir...
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