Purple Pride!

 


 



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Happy Halloween!

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The realization of my diagnosis is starting to settle in and I’m finding myself feeling deflated and anxious. This disease has affected more than just my health. My mom has taken over a large amount of my mommy duties. My girls go to my mom before they come to me if they need something. Any relationships that were “in the making” before my illness plummeted are obviously “no longer”. My friendships seem to be on hold these days. I’m no longer on the call list when a friend wants to go out and be social. Everyone assumes I’m sick in bed… And to be honest, they’re usually right.  This disease is isolating and helpless. There’s no pattern to the symptoms, no warning signs before you turn into a puny, miserable person incapable of doing anything but lie there and breathe… It’s the disease’s world and you’re living in it. You have no idea what the next hour will bring. You live in the now and take full advantage of the good days because you never know how long it’ll be until you ge...
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Chaos

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It’s been 2 weeks since my last post. Life has been non-stop, I tell ya! My car suddenly died after a fulfilling 9 years of life. After a painful 8 hours spent at the car dealership, I got myself a purrty new car!  The following day, I had my port placement procedure. Holy discomfort! My neck vein was in so much pain afterwards. It still isn’t fully recovered. The home nurse came to my house the next day to go over the “how to’s” on everything. Next thing you know, I’m giving myself my own infusions. I’m PRACTICALLY a doctor now! Ain’t no thang!  The first week with my port in, I had 4 really good days. I took my girls to school, I ran errands, I went for walks, I helped make dinner and I took a couple Fusion Barre classes. I felt normal. I felt good! Things took a turn for the worse last Monday. Sunday, I met with a Fusion client whose boyfriend is battling Lyme Disease. When I got home from meeting with them, I felt like I had been hit by a bus. I anticipated the ...
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Jabber

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I’ve had several people reach out to me after reading my blog to send their condolences and I so very much appreciate it. Although, I want to make it very clear that I am, in no way, writing to get attention for my illness. During this strenuous journey, I’ve found that writing is really therapeutic. My initial reason for starting a blog was to document my disease from beginning to end for my own personal records. I later decided to share my blog to the public to keep everyone informed as well as to become a kindred spirit to others.  Writing is not only therapeutic, it’s also a skill that I can STILL perform that Lyme has YET to hijack from me! My brain/mind are slacking. I feel very uneducated much too often. I struggle choosing my words when I’m talking to someone. People probably think I’m a little nuts. Or legitimately stupid. I’m a note taker now. Notes on notes on notes ya’ll! If I’m not taking notes, chances are, I’m not going to remember a darn thing. Brain fog, y...
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