Purple Pride!

 


 



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Happy Halloween!

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The realization of my diagnosis is starting to settle in and I’m finding myself feeling deflated and anxious. This disease has affected more than just my health. My mom has taken over a large amount of my mommy duties. My girls go to my mom before they come to me if they need something. Any relationships that were “in the making” before my illness plummeted are obviously “no longer”. My friendships seem to be on hold these days. I’m no longer on the call list when a friend wants to go out and be social. Everyone assumes I’m sick in bed… And to be honest, they’re usually right.  This disease is isolating and helpless. There’s no pattern to the symptoms, no warning signs before you turn into a puny, miserable person incapable of doing anything but lie there and breathe… It’s the disease’s world and you’re living in it. You have no idea what the next hour will bring. You live in the now and take full advantage of the good days because you never know how long it’ll be until you ge...
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Guess Who's Back - Back Again. Shady's Back, Tell A Friend!

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After a 5 months hiatus from blogging… this girl is back! Welcome October! We meet again… although, in a much improved condition than the previous year. October 14, 2016, I began treatment through a local LLMD (Lyme Literate Medical Doctor). Initial lab results revealed I had 4 vector-infections: Babesia, Bartonellosis, Rocky Mountain Spotted Fever and Classic Lyme. Additionally, I had several viruses: MTHFR mutations, Parvo B19, Influenza A, Coxsackie A and B, HHV 6, Mycoplasma Pneumonia and Epstein-Barr.  I had my first port placed on November 14, 2016 at Menorah Hospital. November 29, 2016, several medications were added to my treatment plan - sleep aids, biofilm “breaker downers”, antimalarials, human plasma, anticoagulants, anticonvulsants, Glutathione, and an oxygen canister.  December, 2016, I experienced my first port infection. The port was removed and a PICC line was placed. Mid December, 2016, I developed multiple clots in my arm where...
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Lyme?

My symptoms “started” in April but let’s quickly fast forward to Friday, September 30th. I was frequenting the nail salon every 5-6 days at this point in my life. The nail technicians and I were best friends! They knew I was more interested in getting an hour long leg massage and less concerned about the polish change at the end. I was experiencing the most intense leg pain and found having my legs rubbed was the only way to cure my aching limbs.  My legs weren't the only body part with piercing pain. Lately, all of my joints ached.  So I'm getting my legs massaged and my phone begins to ring. It’s a Minnesota area code so I figure it’s someone from Mayo calling about my lab results they did in the ER last week when I was there with my mom and aunt. I had an appointment to be seen at Mayo, October 4th, and tried getting seen earlier by going to the ER. I had spent the previous week in bed, convinced I was dying, and insisted my mom drive me to Minnesota.  I answ...
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