Purple Pride!

 


 



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Happy Halloween!

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The realization of my diagnosis is starting to settle in and I’m finding myself feeling deflated and anxious. This disease has affected more than just my health. My mom has taken over a large amount of my mommy duties. My girls go to my mom before they come to me if they need something. Any relationships that were “in the making” before my illness plummeted are obviously “no longer”. My friendships seem to be on hold these days. I’m no longer on the call list when a friend wants to go out and be social. Everyone assumes I’m sick in bed… And to be honest, they’re usually right.  This disease is isolating and helpless. There’s no pattern to the symptoms, no warning signs before you turn into a puny, miserable person incapable of doing anything but lie there and breathe… It’s the disease’s world and you’re living in it. You have no idea what the next hour will bring. You live in the now and take full advantage of the good days because you never know how long it’ll be until you ge...
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"We are in this struggle together."

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“You’re shattered like you’ve never been before. The life you knew is in a thousand pieces on the floor. Words fall short in times like these. When this world drives you to your knees; you think you’re never going to get back to the you that used to be.” Who is familiar with the above lyrics? While boarding my 9:30 PM flight from Chicago to Kansas City last week, my phone vibrated, notifying me that I had a text message. My sister, Kim, had sent me a message with an unknown artist and song title. “Tell your heart to beat again” by Danny Gokey. I turned my phone off and buried my face into Blake’s chest. The overhead lights inside the plane faded while everyone prepared for take-off.   First, let’s rewind a bit. Friday, March 24th, marked the last day of cycle 1 for me. The following week, March 27 - April 2, was considered an ‘off week’ - no antibiotics (infused nor orally). The three weeks in March prior to the 27th were manageable. I averaged two bad days a week - not to...
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Jabber

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I’ve had several people reach out to me after reading my blog to send their condolences and I so very much appreciate it. Although, I want to make it very clear that I am, in no way, writing to get attention for my illness. During this strenuous journey, I’ve found that writing is really therapeutic. My initial reason for starting a blog was to document my disease from beginning to end for my own personal records. I later decided to share my blog to the public to keep everyone informed as well as to become a kindred spirit to others.  Writing is not only therapeutic, it’s also a skill that I can STILL perform that Lyme has YET to hijack from me! My brain/mind are slacking. I feel very uneducated much too often. I struggle choosing my words when I’m talking to someone. People probably think I’m a little nuts. Or legitimately stupid. I’m a note taker now. Notes on notes on notes ya’ll! If I’m not taking notes, chances are, I’m not going to remember a darn thing. Brain fog, y...
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